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The Smith-Magenis Syndrome (SMS) Foundation UK

Health

We want to subsidise the costs of connecting UK Smith-Magenis Syndrome families together to share experiences and build positive futures.

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About this cause

The Smith-Magenis Syndrome Foundation UK is dedicated to working in partnership with families, careers and professionals living and working with Smith-Magenis Syndrome by providing support, information and sponsoring research. The charity’s objects (“the objects”) are: a) To preserve and protect the health and promote the relief of persons affected by Smith-Magenis Syndrome and any associated condition, b) To advance the education of the medical profession and the general public on the subject of Smith-Magenis Syndrome and its implications for the family, c) To advance public education by promoting research into the management of Smith-Magenis Syndrome and to publish the useful results thereof and to support organisations promoting research into Smith-Magenis Syndrome.

How this cause brings people in the community together

We connect with families, care workers, education and health professionals through our biennial conference as well as with locally organised events. Sharing knowledge builds awareness of the syndrome and its requirements to build postive futures the the person with SMS. West Lothian expertise developed over the years is now shared as good practice at our events for the benefit of all communities.